Crown Princess Mary attended a working meeting with Rare Diseases

Crown Princess Mary attended a working meeting with Rare Diseases Denmark's chair Birthe Byskov Holm, director Lene Jensen and information officer Julie Schmidt Hansen. The meeting was also attended by Malene Ramsing Roest and Silas Andersen Roest from the Danish Association for Crouzon Syndrome.

During the meeting, the Crown Princess received, among other things, an update on developments in diagnostics and treatment options for rare diseases and disabilities.

Since 2005, Crown Princess Mary has been patron of Rare Diseases Denmark, a national alliance of more than 55 associations supporting the interests of people affected by rare diseases and disabilities. Rare Diseases Denmark’s work is carried out by volunteers and a minor professional secretariat. It was founded in 1985 under the name KMS – The Danish Association for Rare Diseases.